The Assessment of The Impact of Thrombocytopenia Symptoms on The Patients' Daily Activities with The Use of TSIDAV Vignette

• Autorzy: Monika Szkultecka-Debek , Mariola Drozd , Małgorzata Nowakowska , Marta Bem , Nina Wiśniewska , Joanna Mazur
• Języki publikacji: EN

Abstrakty

EN

Assessment of the impact of thrombocytopenia symptoms on patients' daily activities using vignettes. Vignettes were used to collect information from adult patients and children's caregivers in order to assess the impact of thrombocytopenia symptoms on patients' daily activities. Each vignette consisting of two parts aimed at collecting qualitative information about major health problems related to thrombocytopenia symptoms and at measuring the intensity of the symptoms' impact on daily activities in a quantitative way. Descriptive part collected patients' qualitative information about symptoms influencing their daily functioning or those bothering them the most. Quantitative part using Likert scale assessed the impact of specific symptoms on patients' lives. We collected 61 questionnaires from 31 women, 17 men, 13 children's caregivers. Among men the biggest impact on activities was observed in relation to petechiae and easy bruising (both symptoms were declared as significant by 29% of respondents). 68% women considered skin and mucosa petechiae, 65% indicated easy bruising and 52% bleeding from gums and nose as having significant impact on daily activities. 62% of parents or caregivers believed that petechiae and mucosa had significant impact on the performance of the children's daily activities, same significance was referenced to easy bruising (54%) and bleeding from gums and nose (42%)(original abstract)

Słowa kluczowe

EN

Illness; Medical treatment

PL

Choroby; Leczenie

• Czasopismo: Journal of Health Policy and Outcomes Research
• Rocznik: 2016
• Numer: nr 1
• Strony: 37--42

Twórcy

autor

Monika Szkultecka-Debek

• Department of Dermatology, Military Institute of Medicine, Warsaw

autor

Mariola Drozd

• Department of Applied Pharmacy, Medical University of Lublin

autor

Małgorzata Nowakowska

• Students Research Society "Social Pharmacy" of Department of Applied Pharmacy, Medical University of Lublin

autor

Marta Bem

• Faculty of Social Science, Warsaw University of Life Sciences - SGGW

autor

Nina Wiśniewska

• Department of Dermatology, Military Institute of Medicine, Warsaw

autor

Joanna Mazur

• Department of Child and Adolescent Health, Institute of Mother and Child Warsaw

Bibliografia

• Szkultecka-Dębek M, Drozd M, Bem M. et al. Is the vignette method used to assess quality of life in practice? Curr. Iss. Pharm. Med. Sci. 2015 vol. 28 nr 1 s. 8-12
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• Grainger JD, Young NL, Blanchette VS, et al. Quality of life in immune thrombocytopenia following treatment. Arch Dis Child. 2013 Nov;98(11):895-7. doi: 10.1136/archdischild-2013-303784.; ​Available from:http://www.ncbi.nlm.nih.gov/pubmed/23956257
• Efficace F, Fazi P, Santoro C, et al. Health-Related Quality of Life in Patients with Primary Immune Thrombocytopenia (pITP): Investigating Differences Amongst Newly Diagnosed, Persistent and Chronic Pitp Patients; Blood 2015, 126:2122; ​Available from: http://www.bloodjournal.org/content/126/23/2122?sso-checked=true
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Identyfikatory

DOI

10.7365/JHPOR.2016.1.6