The Adaptation of New Methodology of Quality of Life Assessment in Patients with Thrombocytopenia in Ukraine as a Result of Polish-Ukrainian Collaboration

• Autorzy: Olga Boretska , Yuliya Nastyukha , Monika Szkultecka-Dębek , Mariola Drozd
• Języki publikacji: EN

Abstrakty

EN

Objective. Our aim was linguistic adaptation the Thrombocytopenia Symptoms and their Impact on patients Daily Activities Assessment Vignette (TSIDAV) into Ukrainian. Methods: In the translation process were involved two translators who took into account the cross-cultural aspects during translation of the vignette. The translation was done from Polish to Ukrainian and then was translated back into Polish. The translated version was validated by the vignettes' Polish authors in order to verify the maintains the content, purpose and estimated tool properties of translated version. Results: Vignettes were adapted according to the algorithm described in the methodology of the research. The adaptation algorithm of the vignettes into Ukrainian language follows ISPOR recommendations for translation. The obtained Ukrainian version of the vignettes was tested on a small group of lay people (n=9) in order to test alternative wording and to check understandability, interpretation, and identify potential cultural issues related to the translation. Thus, the last step of vignettes adaptation, such as a review of cognitive debriefing results, finalization and proofreading occurred with involving an Ukrainian professional philologist. As the final result, it was obtained a tool for evaluating the thrombocytopenia symptoms impact on patients' daily activities in Ukraine. Conclusions: The obtained Ukrainian version of the vignette is a simple and fast instrument to assess the impact of symptoms of thrombocytopenia in patients' daily activities. The next step is the process of validating the instrument in Ukraine. (original abstract)

Słowa kluczowe

EN

Quality of life; Illness; Chronic diseases

PL

Jakość życia; Choroby; Choroby przewlekłe

• Czasopismo: Journal of Health Policy and Outcomes Research
• Rocznik: 2016
• Numer: nr 2
• Strony: 41--47

Twórcy

autor

Olga Boretska

• Danylo Halytsky Lviv National Medical University, Lviv, Ukraine

autor

Yuliya Nastyukha

• Danylo Halytsky Lviv National Medical University, Lviv, Ukraine

autor

Monika Szkultecka-Dębek

• Military Institute of Medicine, Warsaw, Poland

autor

Mariola Drozd

• Medical University of Lublin, Lublin, Poland

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Identyfikatory

DOI

10.7365/JHPOR.2016.2.4