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2015 | nr 2 | 95--99
Tytuł artykułu

Assessment of Thrombocytopenia Symptoms Using Vignettes. Preliminary Report on The Development and Implementation of a New Instrument

Warianty tytułu
Języki publikacji
EN
Abstrakty
EN
Our aim was to create a vignette enabling the assessment of the impact of thrombocytopenia symptoms on patients' quality of life. The vignettes which we created are focused on thrombocytopenia symptoms which may influence the quality of life of the patients. The vignettes designed in Polish language are to be used by adult patients and children caregivers and to be administered by an interviewer. There are separate vignettes for adult males and females as well as for children caregivers. Each vignette consists of two parts: the objective of the first one is to collect qualitative information about the major health problems related to the thrombocytopenia symptoms in each studied group, the second is related to specific symptoms and aims at measuring the intensity of impact on the quality of life in a quantitative way(original abstract)
Słowa kluczowe
Rocznik
Numer
Strony
95--99
Opis fizyczny
Twórcy
  • Department of Dermatology, Military Institute of Medicine, Warsaw
  • Department of Applied Pharmacy, Medical University of Lublin
autor
  • Faculty of Social Science, Warsaw University of Life Sciences - SGGW
  • Department of Dermatology, Military Institute of Medicine, Warsaw
autor
  • Department of Child and Adolescent Health, Institute of Mother and Child Warsaw
Bibliografia
  • Collins D., Pretesting survey instruments: An overview of cognitive methods. Quality of Life Research 12: 229-238, 2003
  • Szkultecka-Dębek M., Drozd M., Bem M., et al. Is the vignette method used to assess quality of life in practice? Curr. Iss. Pharm. Med. Sci. 2015 vol. 28 nr 1 s. 8-12
  • Burgdorf WHC., Plewig G., Wolff HH., LLandthler M. Braun Falco Dermatologia, red. Naukowa W.Gliński, tomII, 963-966
  • Kaszuba A., Adamski Z., Leksykon Dermatologiczny, tom I, 352-354
  • Babbie E. Podstawy Badań Społecznych, 2008 r. Wydawnictwo Naukowe PWN
  • A Guide to Writing Multiple Choice Items, American Academy of Neurology, 2013 American Academy of Neurology Institute
  • Université de Montreal, Etape3: rédiger le vignettes et items ​Available from: https://www.cpass.umontreal.ca/recherche-et-developpement/test-de-concordance-de-script-/construire-un-tcs-/etape-3-rediger-le-vignettes-et-items.html; [Accessed: 28.01.2016]
  • Zawilska K., Płytkowe skazy krwi, w Podstawy hematologii, praca zb. pod red. A. Dmoszyńskiej i T. Robaka, Czelej, Lublin 2008
  • Medeiros D., Buchanan GR. Major haemorrhage in children with idiopathic thrombocytopenic purpura: immediate response to therapy and long-term outcome. J. Pediatr. 1998, 133 (3), 334-339
  • Zilber R., Bortz AP.., Yacobovich J et al. Analysis of health-related quality of life in children with immune thrombocytopenia and their parents using the kids' ITP tools.; J Pediatr Hematol Oncol. 2012 Jan; 34(1): 2-5
  • Grainger JD., Young NL., Blanchette VS., Klaassen RJ. Quality of life in immune thrombocytopenia following treatment. Arch Dis Child. 2013 Nov; 98(11): 895-7
  • Mokhtar GM., Farid SM., Shaker NM., Farrag KE. Health-related quality of life of Egyptian children with immune thrombocytopenia and their parents. J Pediatr Hematol Oncol. 2014 Apr; 36(3): 194-9
  • Heitink-Pollé KM., Haverman L., Annink KV., et al. Health-related quality of life in children with newly diagnosed immune thrombocytopenia. Haematologica. 2014 Sep; 99(9): 1525-31
  • Kirsch M., Klaassen RJ., De Geest S., et al. Understanding the importance of using patient-reported outcome measures in patients with immunothrombocytopenia. Semin Hematol. 2013 Jan;.50 Suppl 1:.S39-42
  • S. Rodrigues. "Anaemia and me", "Thrombocyte my friend", "A little story about neutropenia" poems to explain thrombocytopenia, anaemia and neutropenia and their symptoms to children. ​Available from: https://www.europeancancercongress.org/ecco_content/ECCO13_abstractbook/files/assets/seo/page506.html; ​
Typ dokumentu
Bibliografia
Identyfikatory
Identyfikator YADDA
bwmeta1.element.ekon-element-000171466973

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